The purpose of NIDILRR’s Disability and Rehabilitation Research Projects (DRRP) is to plan and conduct research and dissemination and utilization activities to develop knowledge, methods, procedures, and rehabilitation technology that maximize the full inclusion and integration into society, employment, independent living, family/caregiver support, and economic and social self-sufficiency of individuals with disabilities, especially individuals with the greatest support needs, and to improve the effectiveness of services authorized under the Rehabilitation Act of 1973, as amended (Rehabilitation Act).
Donor Name: Administration for Community Living (ACL)
State: All States
County: All Counties
Type of Grant: Grant
Size of the Grant: $425,000
Grant Duration: 60 months
The Administrator of the Administration for Community Living establishes a DRRP priority for the funding of a Burn Injury Model Systems National Data and Statistical Center that advances medical rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of people with burns. This Data Center must maintain the national longitudinal database for data submitted by each of the Burn Model Systems Centers. The Data Center must also ensure collection of high-quality data and support rigorous research by the Burn Model Systems centers by monitoring data quality, providing training in collecting data for the Burn Model Systems database and providing methodological consultation to these centers.
The purpose of this particular DRRP is to maintain the Burn Model Systems National Database and to provide training, technical assistance and support for the Burn Model Systems Centers as they contribute data to this database.
NIDILRR supports research projects that focus on the needs of people with burns. These projects include the Burn Model Systems (BMS) Centers, which are funded through NIDILRR’s Model Systems Program. The Burn Injury Model Systems (BMS) Program was created by NIDILRR (then NIDRR) in 1994 to provide leadership in rehabilitation as a key component of exemplary burn care and to advance the research base related to effective rehabilitation services for burn survivors. The mission of the BMS Program is to improve the lives of persons who experience burn injury and the lives of their family members by creating and disseminating new knowledge about the natural course of burn injury and about rehabilitation treatment and outcomes following burn injury. To implement this mission, the BMS Centers carry out innovative projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and other rehabilitation services for people with burns.
Priority: Burn Model Systems National Data and Statistical Center
The Administrator of the Administration for Community Living establishes a priority for the funding of a Burn Model Systems National Data and Statistical Center (BMS NDSC) that advances rehabilitation by increasing the rigor and efficiency of scientific efforts to assess the experience of individuals with burns over time. To meet this priority, the BMS NDSC must be designed to contribute to the following outcomes:
- Continued successful operation of a national longitudinal database (BMS Database) for data submitted by each of the Burns Model Systems Centers. This database must provide for confidentiality, quality control, and data-retrieval capabilities, using cost-effective and user-friendly technology.
- High-quality, reliable data in the BMS Database. The BMS NDSC must contribute to this outcome by providing training and technical assistance to Burn Model System Centers on subject retention and data collection procedures, data entry methods, and appropriate use of study instruments, and by monitoring the quality of the data submitted by the Burn Model System Centers.
- High-quality data collected from database participants of all racial/ethnic backgrounds. The BMS NDSC must contribute to this outcome by providing knowledge, training, and technical assistance to the BMS Centers on culturally appropriate methods of longitudinal data collection and participant retention.
- Rigorous research conducted by BMS Centers and all investigators who are analyzing data from the BMS Database. The BMS NDSC must contribute to this outcome by making statistical and other methodological consultation available for research projects that use the Database, as well as center-specific and collaborative projects of the BMS Centers.
- Improved quality and efficiency of operations of BMS NDSC operations. The BMS NDSC must contribute to this outcome by collaborating with the Spinal Cord Injury Model Systems National Data and Statistical Center, the Traumatic Brain Injury Model Systems National Data and Statistical Center, and the Model Systems Knowledge Translation Center.
- Increased use and impact of the BMS Database. The BMS NDSC must contribute to this outcome through continued and enhanced collaborations with Federal and non-Federal partners, including collaborations that promote synergy with other common data elements initiatives.
- Improved outcomes of the BMS Centers. The BMS NDSC must contribute to this outcome by managing data, if requested, that are generated by the BMS Centers’ module projects.
- Improved performance of the Burn Injury Model System Centers program. The BMS NDSC must contribute to this outcome by working with the Centers to develop and revise standard operating procedures that provide guidance for the Centers’ operation.
- Increased public accessibility of BMS Database data. The BMS NDSC must contribute to this outcome by
- Ensuring the confidentiality and integrity of the BMS Database,
- Promoting the use of the BMS Database data to advance knowledge, in consultation with NIDILRR, and
- Assisting users of the BMS Database in successfully archiving their datasets.
- Ongoing access to the tools and resources of the BMS NDSC. The BMS NDSC must contribute to this outcome by cooperating and collaborating with the previous BMS NDSC to ensure the smooth and orderly transition to a new BMS NDSC grantee, if necessary. The new grantee, if applicable, must coordinate with NIDILRR and the previous grantee to ensure that the BMS Centers maintain access to data center tools and resources during the brief transition period.
- Estimated Total Funding: $425,000
- Award Ceiling: $425,000 Per Budget Period
- Award Floor $415,000 Per Budget Period
60-month project period with five 12-month budget periods
- Native American tribal governments (Federally recognized)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- County governments
- State governments
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- City or township governments
- Special district governments
- Public and State controlled institutions of higher education
- Small businesses
- For profit organizations other than Small businesses
- Native American tribal organizations (other than Federally recognized tribal governments)
Additional Information on Eligibility
States; public or private agencies, including for-profit agencies; public or private organizations, including for-profit organizations; IHEs’ and Indian tribes and tribal organizations. Foreign entities are not eligible to compete for, or receive, awards made under this announcement. Faith-based and community organizations that meet the eligibility requirements are eligible to receive awards under this funding opportunity announcement.
For more information, visit Grants.gov.